About Us


How We Help
our story
our vision

How We Help

Research shows that 75% of parents who have a premature infant struggle with depression, anxiety, and post-traumatic stress disorder (Bryant, 1999). Some studies suggest that this number is as high as 97% (Holditch-Davis, et. al.). Additional research reveals that parents who participate in support group services are less likely to suffer from these disorders. Support services have also been proven to reduce the length of time an infant remains in the hospital (Mazurek Melnyk, et. al., 2006). While the high-tech nature of the NICU environment provides life-saving therapy for premature infants, support for families is often lacking. Holding Tiny Hands is committed to providing the support families so desperately need.

Tiny Treasure Gift Bags

Tiny Treasures Gift Bags serve as Holding Tiny Hands' introduction to parents. Bags contain items intended to provide comfort to parents and their little one(s) during their NICU stays. Bags also contain information on community resources available to help them care for their premature or chronically ill infant at home.

gift bags include:
  • Reusable tote bag
  • Information folder
  • Preemie baby book/journal
  • Onesie
  • Faith bracelet (for Mom)
  • Faith token (for Dad)
  • Gas card
  • Proud Preemie Parent magnet
  • Water bottle
  • Kleenex
  • Stress ball
  • Baby board book
  • Puzzle Book
  • Pen
  • Kangaroo Quilt
  • Preemies: An Essential Guide Guide for Parents of Premature Babies

Meals for Moms & Dads

Meals for Moms & Dads are monthly meals provided in the hospital which allow parents a break from the stresses of the NICU for a good meal and fellowship with other parents, yet allow them to remain close to their baby. Former NICU parents, along with their NICU graduates, also partake in the meals to provide examples of encouragement, strength, and hope to current NICU families. Grandparents are encouraged to attend. Older former preemies return to provide childcare for younger graduates and siblings. This allows parents the ability to focus on themselves and each other.

Educational Outreach

During a time when parents are at their most vulnerable, parents assume their role on the sidelines in the NICU, lost in the myriad of tubes, wires, and alarms, and relying on others to keep their baby alive. Holding Tiny Hands is there to help parents find their way. Through our educational outreach, we provide an outlet for parents to share and learn from experts and one another. Education sessions for current and graduate parents provide a continuum of support that allows them the opportunity to gain the information needed to become the best advocates for their children. Our educational outreach is based on the following guiding principles of Holding Tiny Hands:

  • 1. All parents play an essential role in the care and development of their premature or chronically ill infant
  • 2. Parents in this critical environment need a strong support system
  • 3. Critically ill infants need a strong advocate
  • 4. All parents can be strong advocates for their child

Our Story

Holding Tiny Hands is made up of former preemie parents who know what it's like to have a baby in the NICU where you are forced to redefine your role as a parent. Instead of protecting your unborn baby in the womb, you watch him fight for his life as he is hooked up to machines with countless tubes and wires coming from his tiny, alien-like body. Instead of feeding her, you watch her receive her nutrients through a tube. Instead of clothing him, you know that he is dressed only in a diaper should something happen that would require immediate access to him. Instead of keeping her from harm, you watch the nurse prick her heal for the eighth time that day to retrieve blood for tests. Instead of hearing him cry, you can only see him cry because of the ventilator tube down his throat. Instead of holding her, you provide what little comfort you can with your hands through the holes of the isolate. Only another parent who has walked through this storm can truly understand what it's like for the parent currently facing these challenges. These are the parents of Holding Tiny Hands, providing encouragement, strength, and hope.

Our Vision

Holding Tiny Hands provides a continuum of support to parents of micro-preemies and chronically ill infants beginning in the neonatal intensive care unit (NICU), throughout discharge, and beyond.

Our Mission, Our Goals:

    • To link parents to community resources that assist them with the care and development of their premature or chronically ill infant
    • To link parents to community resources that assist them with their emotional and psychological health needs
    • To build a sense of empowerment in parents so they may better advocate for their child

our guiding principles

    • All parents play an essential role in the care and development of their premature or chronically ill infant
    • Parents of a premature or chronically ill infant need a strong support system
    • A premature or chronically ill infant needs a strong advocate
    • The healthier the parent, the stronger the advocate
    • A parents ability to advocate for their child is dependent on the parents emotional and psychological health
    • All parents can be strong advocates for their child